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Distinct Post > Entertainment > Celine Dion Opens Up About Rare Neurological Condition in Upcoming Documentary “I Am: Celine Dion”
Entertainment

Celine Dion Opens Up About Rare Neurological Condition in Upcoming Documentary “I Am: Celine Dion”

Lisa Sean Published January 31, 2024
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Renowned Canadian singer Celine Dion is set to unveil a significant chapter of her life in the upcoming documentary, “I Am: Celine Dion,” as she shares her journey of living with a rare neurological condition.

In an Instagram post, the music sensation announced the documentary, stating, “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me.”

The documentary will offer an intimate look into Dion’s private life, providing glimpses of never-seen-before moments during her tours and chronicling her battle with Stiff Person Syndrome (SPS), a rare neurological condition that affects the brain and spinal cord.

The powerhouse vocalist, aged 55, faced the challenge of uncontrolled muscle spasms, leading to the cancellation of tours in 2022. Dion revealed her diagnosis on Instagram, emphasizing her desire to bring awareness to SPS, a condition she has been dealing with for a significant period.

Expressing her motivation behind the documentary, Dion stated, “I wanted to document this part of my life, to try to raise awareness of this little-known condition” in her recent announcement.

Celine Dion, celebrated for chart-topping hits like “My Heart Will Go On,” “Beauty and the Beast,” and “The Power of Love,” has been an influential figure in the music industry.

Produced by Sony Music Vision, the documentary is poised to stream on Amazon Prime Video, with the release date yet to be confirmed. Fans can anticipate a deeply personal portrayal of Celine Dion’s life, chronicling her resilience and efforts to shed light on the challenges posed by Stiff Person Syndrome.

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